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EMBERLY'S STORY

Emberly was born on December 27th, 2022, at 10:41 p.m. to mom Haley and dad Jeremy at St. Boniface Hospital in Winnipeg, Manitoba.

 

Her heart defect was not noticed until her 41-week scan in preparation for her induction.  Shortly after Emberly was born she was diagnosed with multiple congenital heart defects and taken to the NICU at the Women's Hospital in Winnipeg, Manitoba.

 

In preparation to her flight to Edmonton, she was intubated and an ng feeding tube was placed.

 

On December 29th, 2022, Emberly and her mom flew out to Edmonton on a medical cargo plane to be admitted to the David Schiff NICU in the Stollery Children's Hospital in Edmonton, Alberta.

 

On December 31st, Emberly's dad Jeremy joined Emberly and her mom in Edmonton as they anxiously waited for her surgery date.

 

On January 3rd, 2023, Emberly had a 7-hour long heart surgery to repair her heart by the exceptionally talented surgeon and staff at the Mazankowski Alberta Heart Institute.

 

The repair to her aorta was not 100% successful as they also discovered a kink in her aorta where the narrowing was.  At this time her left lung was only receiving approximately 20% oxygen while the right lung received 80%.

 

On January 19th, she received a follow-up procedure via catheter to complete the repairs to the narrowing in her aorta.  This procedure was successful and she was receiving almost equal distribution of oxygen to both of her lungs.

 

Emberly was extubated shortly after this procedure and had the opportunity to practice oral feeds before returning back home to Winnipeg once a bed opened up for her in the PICU at the Health Sciences Center.

 

On January 27th, Emberly's parents flew back to Winnipeg via a commercial flight and Emberly flew back home the following morning via a medical cargo plane.

 

She was admitted to the PICU at the Health Sciences Center in Winnipeg, Manitoba.  She recovered incredibly well from her heart surgery and was excelling in her oral feeds that she was moved to the wards later that day.

 

On February 1st, she unfortunately experienced a positional asphyxiation incident while in hospital.  She was intubated again and brought back to the PICU for observation.

 

She spent a week in the PICU before being extubated again and being sent back to the wards.  She was discharged on February 14th and went home for the first time.

 

On March 3rd, she unfortunately experienced a second positional asphyxiation incident.

 

Fortunately, her mom was able to perform mouth-to-mouth on her before paramedics arrived.  She was rushed to the Health Science Center by ambulance and was admitted into the PICU where she was intubated for a third time.

 

She spent a week in the PICU before being extubated and sent back to the wards.  She was discharged on March 14th, 2023, and is thriving at home with her parents.

 

 Emberley's parents understand that she will need follow-up procedures in the future as her heart continues to grow and are enjoying every day they have with their beautiful baby girl.

 

Emberly has proven that no matter what obstacles come her way, she has a fight in her and a fire that undoubtedly cannot be extinguished.

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EMBERLY'S DIAGNOSIS

Atrial Septel Defect - there is a hole in the wall (septum) that divides the upper chambers (atria) of her heart.

Coarctation of the Aorta - a part of her aorta is narrower than usual.

Overriding Pulmonary Aorta - her aorta is in the wrong place.

Single Right Coronary Artery - a rare congenital anomaly where only one coronary artery arises from a single coronary ostium to supply her entire heart.

Taussig-Bing Anomaly - transposition of the aorta to the right ventricle and malposition of the pulmonary artery with subpulmonary ventricular septal defect.

Transposition of the Great Arteries - her two main arteries that carry blood out of her heart – the main pulmonary artery and the aorta – are switched in position, or “transposed.”

Ventricular Septal Defect - there is a hole in the wall (septum) that separates the two lower chambers (ventricles) of her heart.

Information about Congenital Heart Defects in Canada from the Canadian Congenital Heart Alliance
Information about Congenital Heart Defects in Canada from the Canadian Congenital Heart Alliance
Embers of Love - Emberly's Story and Diagnosis.
Embers of Love - Emberly's Story and Diagnosis.
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